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HGHS Blog

This space created from the heart, by two moms navigating the unique challenges of raising children with complex medical needs. This isn’t just a blog; it’s a community, a safe haven, and a call to action.


the little joys that carry us
Rachel Dutro Rachel Dutro

the little joys that carry us

Sometimes it’s not the big milestones that keep us going.
It’s the tiniest flickers of grace. The ordinary glimmers of magic. The quiet proof that we’re not alone in this.

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Hands Off Our Hope
Rachel Dutro Rachel Dutro

Hands Off Our Hope

Jan stood in front of the crowd and told them about our daughter Cassie. About how, after her diagnosis with Krabbe Disease, we were immediately thrust into a world of appointments, machines, specialists, and systems…

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My Relentless Dance with Fate
Rachel Dutro Rachel Dutro

My Relentless Dance with Fate

It started before I even knew what “fate” was, before I could name the heaviness in my chest or the storm in my mind. I fought battles that no one should have to fight…

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Your Choice
Rachel Dutro Rachel Dutro

Your Choice

From the Heart That Holds Heaven —

Grief is a weight unlike any other. It shifts, it lingers, it presses into the deepest parts of me. Some days, it whispers…

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the loss of my life
Daily Diary Rachel Dutro Daily Diary Rachel Dutro

the loss of my life

from the weary heart —

"It’s 6 AM, and the world is still. But in this room, the silence is heavy, broken only by your cries and my whispered reassurances. Since 3 AM, we’ve swayed to this fragile rhythm, up and down, as if trying to outrun time. I hold you close, feeling the weight of your tiny body and the war it’s waging—a fight it was never meant to endure. Each breath feels heavier, each moment more fragile.

And yet, as I cradle you, I wonder… will this be the last time?

My sweet baby, you’ve changed me in ways I never imagined. You, the one who made me a mother, rewrote my heart in ways both beautiful and unbearable. If you are tired, my love, it’s okay to rest. You will always be my always."

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Split Yet Whole: A Bond Beyond Control
Daily Diary Rachel Dutro Daily Diary Rachel Dutro

Split Yet Whole: A Bond Beyond Control

words from jj knight —

Grief is a paradox. It fills you with emptiness, drowns you in longing, and yet somehow carves out an even deeper capacity for love. As I watch my daughter, a part of me, yet so far from my control, I feel everything all at once. Love and fear, joy and sorrow, hope and dread. The ache in my arms mirrors the ache in my soul, a constant reminder of how fiercely I wish to protect her from a world I cannot shield her from.

This poem is a reflection of that duality: the brightness of her spirit and the shadow of my fears. It’s about living with the unbearable, about praying for time while cherishing each fleeting moment. It’s about what it means to love someone so much that even the thought of losing them feels impossible to survive, and yet, somehow, you do.

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The Titles I Didn’t Ask For
Daily Diary Guest User Daily Diary Guest User

The Titles I Didn’t Ask For

from the reluctant healer —

I never wanted to be a nurse or a caregiver, those titles were thrust upon me when life demanded it. As a mother navigating the chaos of medical caregiving, every moment is a delicate balance of love, vigilance, and exhaustion. These roles are heavy, unrelenting, and ones I never asked for, but I carry them all for her. Because she needs me to.

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Rain Sounds and Midnight Reflections
Daily Diary Guest User Daily Diary Guest User

Rain Sounds and Midnight Reflections

from the silent mourner — 

In the stillness of midnight, accompanied only by the rhythmic patter of rain and the hum of my child’s sound machine, my thoughts unravel. Grief and love intertwine in ways I never expected, reshaping everything I thought I knew about life, motherhood, and the weight of emotions too big to hold. As the rain falls, so do my reflections—on love’s power, grief’s permanence, and the unyielding beauty of both.

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Wakeful nights
Daily Diary Guest User Daily Diary Guest User

Wakeful nights

From the quiet dreamer –

In the stillness of 3 a.m., I find a fleeting sense of freedom. These stolen moments, though quiet and unremarkable, are a lifeline—a connection to a version of myself that feels so far away. Even as exhaustion waits for me in the morning, I cling to the rebellious sacredness of this time. Because in these wakeful nights, I’m not just stealing hours; I’m holding on to pieces of who I am.

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Reflections in the Quiet Snow
Daily Diary Guest User Daily Diary Guest User

Reflections in the Quiet Snow

from the heart of a fellow traveler —

“This morning, I stepped outside into a world untouched by the day, quiet, still, and blanketed in fresh snow. It felt sacred, almost like the earth itself was taking a deep breath before the chaos of life began again. In that peaceful moment, I found myself reflecting on how much life has changed, how grief and parenthood have reshaped me in ways I never imagined.”

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Daily Essentials for Parenting a Child with Severe Disabilities: Our Tried-and-True Favorites
Our Favorite Things Rachel Dutro Our Favorite Things Rachel Dutro

Daily Essentials for Parenting a Child with Severe Disabilities: Our Tried-and-True Favorites

Parenting a child with severe disabilities comes with unique challenges, but the right tools can make all the difference. In this post, we’re sharing the daily essentials that help us support Cassie’s needs while making our lives a little easier. From sensory toys to adaptive clothing and feeding tools, these tried-and-true favorites have been game-changers for our family.

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Relationships and Raising a Medically Complex Child: Finding Strength Together
Parenting Chronicles Rachel Dutro Parenting Chronicles Rachel Dutro

Relationships and Raising a Medically Complex Child: Finding Strength Together

Parenting a medically complex child reshapes every relationship in your life. From navigating grief and resilience in marriage to redefining friendships and family roles, this journey is as challenging as it is transformative. In this post, I share my honest experiences of love, loss, and growth, and how, even in the hardest moments, connection and grace have carried us through.

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Welcome letter
Rachel Dutro Rachel Dutro

Welcome letter

Welcome to Her Grief, Her Strength, where two complex medical moms share their journeys of grief, resilience, and advocacy.

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