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Her Grief, Her Strength
Her Grief, Her Strength
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Giving Page
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Her Grief, Her Strength
Her Grief, Her Strength
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Giving Page
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Mom Chat: Off-Topic + Open Thread
Rachel Dutro 5/22/25 Rachel Dutro 5/22/25

Mom Chat: Off-Topic + Open Thread

Mom Chat: Off-Topic + Open Thread

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Introductions
Rachel Dutro 3/11/19 Rachel Dutro 3/11/19

Introductions

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Medical Supply Swap
Rachel Dutro 3/11/19 Rachel Dutro 3/11/19

Medical Supply Swap

It all begins with an idea.

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The Grief Garden Wall
Rachel Dutro 3/11/19 Rachel Dutro 3/11/19

The Grief Garden Wall

The Grief Garden Wall

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Advocacy & Action
Rachel Dutro 3/11/19 Rachel Dutro 3/11/19

Advocacy & Action

Advocacy & Action

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View fullsize 🤍 Community Highlight: Sidney, Tim & Little Roni! 🤍 This beautiful family just went on their first ever vacation, a getaway rooted in love, courage, and soaking up every sacred moment. 🌊⛅️ Sweet Ronan, who was born just three days apart from
View fullsize Endings hold beauty too. We talk a lot about grief here. its ache, its weight, its unrelenting presence. But sometimes, in the quiet of a sunset, we’re reminded that even endings can be soft, full of light, and painted with love. Not everyth
View fullsize #ourfavoritepostsfromlastweek 🤍 This space is built on stories, connection, and the kind of truth that sits quietly in your chest. Last week, these words found us, and maybe they’ll find you too. From whispers to our younger selves, to the a
View fullsize Dear Anna, This is a moment I couldn’t have envisioned but one I prayed for. To watch you experience the world around you without inhibition or apprehension and free of sterile rooms and pulse ox alarms, healed something within me. When I carr
View fullsize Save this for a hard moment or try it now! What’s one thing you can see that brings you comfort? • • • #ChildhoodRareDisease #HGHSCommunity #HGHSAdvocacy #RareDiseaseJourney #MomsOfHGHS #StrengthThroughAdversity #RareDiseaseMom
View fullsize There’s so much wisdom, strength, and honesty in this community, and every week, I come across posts that stop me in my scroll. This series is my little love note to the brave, bold, and beautiful voices I saw last week. You inspire me. You mov
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View fullsize Today we celebrate a very special girl Happy FIRST Birthday, Anna Lynne! 🤍 One year ago, this beautiful little soul made her way into the world, and in her first trip around the sun, she’s already inspired more love, strength, advocacy, and h

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